Please click here for any questions on CRYSVITA® (burosumab-twza) and to be transferred to Kyowa Kirin Cares website.
UltraCare can help you navigate access to treatment. Use the resources below to learn more.
1-888-756-8657
Download a printable brochure about how UltraCare can help patients gain access to treatment.
Descargue un folleto para imprimir con información sobre cómo UltraCare puede ayudar a los pacientes a acceder al tratamiento.
FAODinFocus is an informational website that helps families understand how life changes with a long-chain fatty acid oxidation disorder (LC-FAOD). Learn more about LC-FAOD and the resources that are available.
MPSVIIinFocus is an educational website for healthcare providers and families to learn about a mucopolysaccaridosis 7 (MPS VII), also known as Sly syndrome.
Understanding GSDIa is an educational website for individuals and families to learn more about glycogen storage disease type Ia (GSDIa), also known as von Gierke disease and download helpful resources.
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PATIENT CONSENT TO SHARE AND USE PROTECTED HEALTH INFORMATION (PHI) [REQUIRED]
I understand that Ultragenyx Pharmaceutical Inc., and its agents, contractors, and other partners (“Ultragenyx”) will need to obtain, review, use, and disclose my personal and medical information (“My Information”) before I can receive assistance through the UltraCare Patient Services Program. For additional information about how Ultragenyx may collect and use personal information, including applicable U.S. state privacy rights and notices for different state residents, please visit www.ultragenyx.com/privacy-policy. Separate and apart from these policies, your data may also be subject to our Cookie Policy, if this form is accessed online.
Information to Be Disclosed: My Information related to my enrollment or participation in the Program may include but is not limited to:
General information about me, including my name, birth date, last 4 digits of my social security number, and contact information
Information about my medical records, including information about my medical history or treatment with this prescription medication or related medical conditions
Information about my health benefits or health insurance coverage
Financial information (as necessary), such as my income
All information provided on this enrollment form and otherwise provided by me to Ultracare
Persons Authorized to Disclose and Use My Information: I authorize the following parties to disclose My Information to Ultragenyx:
My healthcare providers, including any pharmacy that fills my prescription medication
Any health plans, including my health insurance company, or programs that provide me with healthcare benefits
I also authorize Ultragenyx and its partners to redisclose My Information to the following parties:
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My health plans, including my health insurance company
My authorized representative under federal or state law (if applicable)
Purposes for Which My Information May Be Used and Disclosed: My Information may be used and disclosed for the following purposes:
Completing the enrollment process and verifying the information provided on my enrollment form, including confirming my identity and my use or potential use of the medication prescribed by my healthcare provider
Establishing my eligibility for benefits from my health plan or other programs
Providing financial assistance and reimbursement support, if I am eligible, and providing other applicable support, including information on third-party resources that may be able to assist me
Communicating with my healthcare providers and coordinating my prescription and medication through a pharmacy or healthcare provider’s office
Contacting me to evaluate the effectiveness of UltraCare
Ultragenyx’s internal business purposes, meeting legal requirements, and audit and compliance purposes
Confirming my receipt of the prescribed Ultragenyx medication through UltraCare
Deidentifying the information I provide, which means removing elements like my name and address so that I am no longer reasonably identifiable
Identifying past UltraCare users in order to ensure continuity of service
Contacting me about educational events, newsletters, resources, and potential opportunities to share my story and participate in market research, which I can unsubscribe from at any time without affecting my access to the UltraCare Patient Services Program
Other Important Points:
I understand that I may choose not to sign this authorization. If I refuse, my eligibility for health plan benefits or ability to obtain treatment from my healthcare providers will not change, but I will not have access to the support offered by UltraCare. Program may not be combined with any third-party rebate, coupon, or offer
I understand third-party vendors, such as specialty pharmacies, may receive financial remuneration in exchange for data, product support services, reimbursement services, etc
Once I sign this Patient Authorization and My Information is transmitted to Ultragenyx and its partners, I understand that state and federal privacy laws may no longer protect, or prohibit the redisclosure of, My Information disclosed to Ultragenyx and its partners by my healthcare provider or others
I understand that I am entitled to a copy of this signed authorization and that the authorization to share, disclose, and/or redisclose PHI expires one year from the date of execution, or one year after the date of my last prescription, whichever is later, unless a shorter period is required by state law
I understand that I can cancel this authorization at any time by notifying my UltraCare representative or Ultragenyx directly at 1-888-756-8657 or by writing to the address listed at the top of this form. If I cancel, Ultragenyx will stop using this authorization to obtain, use, or disclose My Information after the cancellation date, but the cancellation will not affect uses or disclosures of My Information that have already been made pursuant to this authorization before the cancellation date
More information on my privacy rights, including specific rights I may have, can be found in Ultragenyx's privacy policy (www.ultragenyx.com/privacy-policy)
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